Amber's Place

~Amber's Place~

We thanked God when Amber was born a healthy baby. She was “on time” with all her developmental skills. She was walking at one year old. Everything was on schedule. She was so mischievous and always had a smile on her face. We all welcomed Jennifer into our little family two years later. Amber loved her “Sissy”. They were such sweet little girls and the light of our lives.

When Amber was nearly ten years old she began falling and her hands became a little shaky when she held a glass at the dinner table. I knew something was wrong. We took her to the doctor and after several months of tests she was diagnosed with a rare form of muscular dystrophy called Friedreich’s Ataxia. We were devastated and our hearts were broken. There was no cure.

At age twelve the disease had progressed and we finally purchased her first wheelchair to use at school. Taking our little girl to “pick out” a wheelchair was heart breaking. But we knew it was time.
In the next few years she endured surgeries for scoliosis and a tendon release for her legs. There were always doctor appointments to keep check on her heart and whatever else came our way.

Amber was main stream in all her school classes and graduated from high school in 1998. She then went on to a local community college for two years.
During this time she was a huge Atlanta Braves fan and watched every game on TV … when we were not going to the games. She finally got to meet some of her favorite players with the Braves organization. The smile on her face that day!!

The muscular dystrophy progressed over the years and things began to worsen. She never liked to read until she read a Karen Kingsbury book. Karen writes wonderful Christian fiction books. Immediately Amber was hooked on reading! She read hundreds of books in several years. She often read three to four books a week. Karen Kingsbury was in our area several times for speaking engagements or book signings and we would take Amber. She and Karen became friends and kept in contact.
Amber was so creative. She and I scrapbooked together. She would come up with ideas and I put them on paper. I cherish the hours we spent together.

On July 23, 2009 Amber was not feeling well. She had days when she didn’t feel up to par … but we all do. That night she became worse and we immediately took her to the hospital. We found out she had diabetes. She began meds in ICU and was stabilized. She was asking when she could go home. Suddenly on July 24, 2009 Amber’s heartbeat became erratic and she was put on a ventilator. We held out hope until later that night her lungs shut down. Amber went to be with Jesus.

I held her in my arms as she left this world and went to Heaven surrounded by family and friends. Needless to say the next few days were the most difficult days of our lives.
I think back now remembering the last time I washed her hair not knowing it was the last time. Just to tell her I love her one more time …

Our hearts are broken and life will never be the same. We all know we will be reunited again one day n Heaven and what a day that will be to see her walking again.
Thank you for reading just a little about Amber’s life. I hope she touched your heart as she did so many others in her nearly thirty years here on earth.

~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ 

We just know that Amber is zipping
 all about in Heaven!
She is walking and running,
something that here on earth she was unable to do!
And all those babies in Heaven?
They are ever so gently rocked by Amber...

Two years ago, I bought a pair of purple tennis shoes.
Donna saw a picture of me in them and
decided to get a pair of her own!
Since Amber loved, loved, the color purple,
Donna and I wear our purple "kicks"
in honor of Amber!
It definitely makes me smile and think of Amber,
a girl I never got to meet in person,
but grew to love through her mom's stories of her!
So, go on!
Get yourself a pair of purple kicks!
And wear them in honor of Amber!
We know that big grin on her sweet face
will be even bigger!
As she watches over us from Heaven.

Blessings to all...
xo, misha
February 3, 2012


Bianca said...

Even though I'm not a mother myself, I think the worst a mother can happen is loosing a child.
Hope that blogging about her and your daily life gives you a place to vent and find support.
And, since I love, love, love purple myself and after reading this, I'll get myself a pair of purple kicks! For Amber and for you Donna.
Love and hugs, Bianca

Susan said...

Donna, thank you for sharing Amber's story. I did not know until today what happened to Amber. I knew it was a tragic loss for you and your family. You and your family have been in my prayers daily since I have known you on my blog and yours.
I will most definitely look for a pair of purple Keds.
I planted sunflowers the other day and bought a bunch more seeds. I thought of Amber when I planted those flowers.
I just imagine she was as sunny as those flowers, I know anyone who is growing sunflowers they are being blessed by Amber.

Creations By Cindy said...

Donna, I just read Amber's story! I cannot even begin to imagine the grief. I am so touched by Amber's life that you have shared and I have no words to express my heart. I am so grateful that your oldest daughter encouraged you to participate in life itself. Your blogging is wonderful and I enjoy visiting with you. One day you will Amber walking on the streets of Glory and singing praises to the King of Kings. What a day that will be!!!! Hugs and blessings my friend. Cindy

Susan said...

I hadn't read this before. I'm so sorry. I know what it means to lose a child. My youngest was killed in a car accident when he was 18. No one can replace anyone else.
I'm so glad Jesus defeated death.